When Rain Hurts by Mary Evelyn Greene

May 5, 2013

May 5, 2013


Mudge Pond, Sharon CT (May 4, 2013)

Mudge Pond, Sharon CT (May 4, 2013)

May 5, 2013.  Spring officially has arrived in the mid-Hudson Valley, but it sure has taken its time.  First came the Forsythia, then daffodils, cherry trees, and now even a few tulips.  Grass has finally transformed the barren landscape just as the spring leaves arrive. The nights are still cold, unseasonably really, but the days are warming gloriously.  I have never taken our town, our beautiful countryside, for granted, and I certainly mustn’t now.  We’re moving to Montgomery County, Maryland, a fact that leaves me feeling both excited and a little forlorn.  I love Red Hook and the Mayberry-like existence that all its residents enjoy.  Unlocked homes, unlocked cars, unlocked bikes, and a friendly smile at nearly every turn.  Given the natural splendor that surrounds us – the organic farms, the Catskill Mountains, the historic buildings, the mighty Hudson River, I don’t understand why the area isn’t overrun with transplants.  But of course, I’m glad it’s not.  We’re moving because I’ve taken a position with an environmental nonprofit in Washington, DC.  I’m going back to work full-time.  It’s a dream job for me but it wasn’t an easy decision.  Not only will it be hard leaving the home we love, it feels like we’re jumping off a cliff when it comes to Peter, and even Sophie.  We finally have both kids in wonderful schools and now we’re yanking them out.  Peter’s time at Green Chimneys has been nothing short of transformative.  He arrived there, almost two years ago, a confused, angry, out of control, and self-abusive child.  We feared for his safety and for that of our daughter.  Today he is an increasingly confident eleven-year old, a leader in his classroom and his dorm.  He’s proud of his accomplishments and so are we.  He is more centered, regulated, and connected than we ever dreamed possible. But he’s also vulnerable, and all involved in his treatment realize that he requires continued intensive support to remain successful.  In every way, his ability to cope with the outside world is as fragile as the many seedlings fighting their way through the soil toward the warm spring sun.  And so what will Maryland bring?  The good news is that Peter will be transitioning from residential treatment to a day program.  That constant feeling that something’s wrong, that our family’s not whole, that I’m missing a limb, will surely disappear.  But the staff at Green Chimneys keeps the kids busy from the moment they wake up until the exact moment the lights go off at bedtime.  It’s a key component of their success formula.  Children with self-regulatory issues don’t cope well with free time.  It’s not possible to replicate this kind of regimentation (albeit benign) in the home.  Peter is going to have to cope with less structure.  He’s going to have to learn to occupy himself, at least a little, after school and on the weekends.  He’s going to have to learn to handle change in plans and the occasional unexpected . . . whatever.  For our part – and wow, I do realize that most of his success (and thus our family’s) depends on how Pat and I handle the every single day around-the-clock challenges, we’ll need to find a way to remain patient, forever consistent, vigilant, and braced against provocation.  A tall order, especially given that all of us are facing so much change.  For me, a new career, a long commute, a relinquishing of some of the day-to-day responsibilities.  For Pat, who works from home, it means more childcare, more Peter, more errands in gridlock traffic.  For Sophie, a myriad of change conspiring to fuel new anxieties: a new school, new kids, a new “forever” home (this will be # 3), and a formerly volatile brother re-entering her daily life.  For all of us, saying goodbye to the landscape we love.  Just today we watched our neighbors sheering llamas and alpacas for the 4-H club.  I doubt we’ll be running into llamas much in Maryland.  All of these changes are stressful but well within the boundaries of what any family faces in the midst of major change.  But as always, the health and tenor of our family depends primarily on Peter’s state of mind, and so his adjustment is the wildcard.  Will a new school district fight us in terms of placement?  We and Green Chimneys feel strongly that he needs to be in a specialized, private day treatment program, and we’ve got our eye on a few. His treatment team laughed, literally, at the idea of Peter re-entering a public school program, even an imbedded self-contained one. I’m hoping the fact that he’s coming from an RTC (where he has a 1:1 aide), and that we’ve already taken a school district to hearing and won, will squash any thoughts on the new CSE’s part that they can handle Peter in district.  They can’t.  We’ll file for hearing immediately should they signal otherwise.  We won’t let another school district rip our home, our family, our stability, and our safety to shreds in an effort to save a few dollars or prove a point.  Hopefully the saber rattling won’t be necessary.  I’m doing my best not to focus on the what-ifs right now and instead attend to what’s before me.  Today it’s sorting through closets, and barbequing, watching llamas and grocery shopping, and hopefully playing cards with the kids and Grandma after dinner.  It’s late afternoon and the weather is perfect.  I drive down my road (in my convertible) and breath in the fresh scents of spring in the mid-Hudson Valley.  I’ve tried for years to come up with viable employment here but it just isn’t possible.  Mine is a city girl’s career.  And so soon we’ll be heading to the city, where energy abounds to help propel us into this next chapter of our lives.  In all likelihood, Peter will become an adult there.  Not in the insulated, blissfully frozen-in-time Town of Red Hook, but in a large metro, urban environment with lots to offer and lots to tempt.  But I’m ready for this.  I’m excited about my job and I’m glad Peter’s coming home.  I just hope everyone else is ready too.

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10 Comments »

  1. Wow! Best of luck, Mary. I will be most eager to hear the next chapter. In such a more populated area, I would assume that you will have more choices for both Sophie and Peter.

    Comment by Cynthia Kirtland — May 5, 2013 @ 7:50 pm | Reply

  2. Glad to hear of your positive career change and supportive hubby. Also glad to hear Peter has had such improvement. Best wishes in your new home.

    Comment by Lori — May 6, 2013 @ 12:04 am | Reply

  3. Welcome to Maryland!! It will be great to have you as a neighbor!

    Comment by Julie — May 6, 2013 @ 10:38 am | Reply

  4. I second the welcome to Maryland! We’re also in Montgomery County:-) All the best in your move.

    Comment by Tamara Grant — May 8, 2013 @ 6:44 pm | Reply

  5. My adopted child (now a teen) also has FAS. Although we live in a rural area, there is always serious trouble available for her to find when she has two minutes of free time. She was raped two weeks ago by a female teenager that she met at a youth camp. I politely and STRONGLY suggest that you find some form of wraparound service that will send a sitter to your home when your child has any free time when an adult cannot closely watch him. This is the only way to keep our FAS teens and children safe. They must have an external brain with them regardless of their IQ. They do not consider consequences or see potential danger.

    Raising an FAS child is a very difficult and frequently sad journey. May God send us strength and patience.

    Comment by Cindy — May 9, 2013 @ 3:44 pm | Reply

    • Dear Cindy, thank you for sharing your difficult experience. My heart goes out to you and your daughter. I agree 100%, by the way, with the need for wraparound services – I can’t imagine ever leaving our son for a minute unsupervised. It’s not that he wouldn’t try to do the right thing (he almost always does), but when confronted with the unexpected, he can’t react and process what is happening, much less accurately judge a situation. Makes him (and all FASD kids) extremely vulnerable.

      Here’s to hoping their paths becomes a little less thorny as they mature. Take care – Mary

      Comment by whenrainhurts — May 9, 2013 @ 8:26 pm | Reply


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